Text Size: SMALL  LARGE

International Member Organizations


European Cavernoma Alliance

ECA is a federation of European patient advocacy organizations working together to improve care for cavernous angioma patients across Europe and to support research. 

Their website with links to each member organization's site:  European Cavernoma Alliance

Facebook page: https://www.facebook.com/EuropeanCavernomaAlliance/

Twitter:  https://twitter.com/EuropeCavernoma 

-------------------------

Australia

On Facebook - a group that was started by Australians and has grown to be international: Cavernoma Support Group

 

Belgium

Vascular Anomaly Patient Association: VASCAPA

 

Brazil

Visit the Brazilian website:  http://www.cavernoma.org.br/

Brazilian Facebook page: https://www.facebook.com/Aliancacavernomabrasil

 

Canada

Visit Angioma Alliance Canada: http://angioma.ca/ 

Canadian Facebook: http://www.facebook.com/AngiomaAllianceCanada

 

For European Members (especially where no country group exists)

On Facebook:  Europe - Cavernous Angioma Support Group

 

France

Association sur les Cavernomes Cérébraux: http://association-cavernome-cerebral.e-monsite.com/

Facebook discussion group: La cavernomatose...maladie rare 

 

Germany

Visit the German information website: http://cavernom.de/ 

 

India

Facebook discussion groups: https://www.facebook.com/groups/CavernousAngiomaAllianceIndia/  

 

Ireland

On Facebook: Cavernoma Ireland (public page) and Cavernoma Ireland Support Group (private group)

 

Italy

ANACC ONLUS (l'associazione nazionale angioma cavernoso cerebrale): www.anacconlus.org

Facebook: https://www.facebook.com/AngiomaCavernosoCerebraleLaCommunity/ 

Latin America

On Facebook: Angioma Alliance Latinoamerica

 

Philippines

On Facebook: Cavernoma Support Group Philippines

 

South Africa

On Facebook: Living with Cavernoma South Africa

 

Spain

Asociación Española de Cavernomas:

Web: www.cavernomas.org

Facebook: https://www.facebook.com/cavernomas/


Sweden

Cavernost Angioma Sverige (CASE)

Facebook: https://www.facebook.com/cavernostangiomsverige.case/


United Kingdom

Visit Cavernoma Alliance UK: http://www.cavernoma.org.uk/

Cavernoma Society: https://cavernomasociety.org.uk/

 

 

Updated 2020.3.15