Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. 

We request that physicians report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who tests positive for COVID-19.

Patients and families may also self-report.

To report a cavernous angioma patient who has tested positive for COVID-19, you must have the patient or their guardian's permission to do so. Consent forms will be available shortly, but please provide your contact information now. 

Please complete the form below and a member of our clinical research team will reach out to you for more information in the coming weeks.

We plan to analyze this information and share results with the patient, clinical, and research communities as well as publishing the results as appropriate.

LuxSci helps ensure HIPAA-compliance for email and web services.

LuxSci: Secure communications