Calendar

Don't see an event in your area? Reach out to us to plan something in your community! Join the movement - participate, donate and meet others affected by CCM!

PLEASE NOTE: This calendar does not detect your time zone. Times listed are US Eastern Time for online events or local time for in-person events. Please click on an event to find out when it’s happening in your area.

Scroll below our calendar to find a link to Subscribe so you’ll always know when we schedule something new!

Posterboard
Posterboard
July – November 2021 Jul – Nov 2021
Jul
29
Thu
Jul 29 @ 7:00 pm – 8:00 pm
7:00 pm
Tickets
Please join Dr. Jan-Karl Burkhardt, cerebrovascular neurosurgeon at the University of Pennsylvania Medicine, for a discussion of CCM clinical decision-making. Dr. Burkhardt will review factors taken into consideration when deciding between surgery versus conservative management...
Zoom
Jul
29
Thu
Jul 29 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug
3
Tue
Aug 3 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us to connect with other young people affected by cavernous angioma.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Aug
5
Thu
Aug 5 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Aug
5
Thu
Aug 5 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug
12
Thu
Aug 12 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug
19
Thu
Aug 19 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug
19
Thu
Aug 19 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Aug
26
Thu
Aug 26 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Aug
29
Sun
Aug 29 @ 2:30 pm – 6:00 pm
2:30 pm
Tickets
Angioma Alliance is having a large, multi-site national event, and we’d like to invite you to our party in the Boston area. In general, we are celebrating together for a cure by hosting house parties...
Chuck Korb's house
Aug
29
Sun
Aug 29 @ 3:30 pm – 6:00 pm
3:30 pm
Tickets
Please join us on August 29th, 2021 for a national Angioma Alliance event to celebrate together for a cure. We are thrilled to be together again. This event includes: A live-streamed program featuring stories and...
Around the United States!
Aug
31
Tue
Aug 31 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us to connect with other young people affected by cavernous angioma.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Sep
2
Thu
Sep 2 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Sep
2
Thu
Sep 2 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Sep
9
Thu
Sep 9 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Sep
16
Thu
Sep 16 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Sep
16
Thu
Sep 16 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Sep
19
Sun
Sep 19 @ 8:00 am – 11:00 am
8:00 am
Tickets
Join us once again for our 5th Annual Orange County 5k Walk/Run Sunday September 19th! We are excited to be together again!  Come enjoy the company of friends and family, food, raffle, silent auction, and...
Florence Joyner Olympiad Park
Sep
23
Thu
Sep 23 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Sep
30
Thu
Sep 30 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Sep
30
Thu
Sep 30 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct
5
Tue
Oct 5 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us to connect with other young people affected by cavernous angioma.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Oct
7
Thu
Oct 7 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct
14
Thu
Oct 14 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct
14
Thu
Oct 14 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Join us on the 3rd Thursday of the month at 8pm Eastern, 5pm Pacific for a special group for parents of children affected by CCMs. You will join our weekly support group meeting and then...
Oct
21
Thu
Oct 21 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Oct
28
Thu
Oct 28 @ 8:00 pm – 9:00 pm
8:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
Nov
2
Tue
Nov 2 @ 9:00 pm – 10:00 pm
9:00 pm
Tickets
Join us to connect with other young people affected by cavernous angioma.  We usually play some games and have some time to chat. We will meet at 8pm Eastern. Register in advance for this meeting:...
Nov
4
Thu
Nov 4 @ 9:00 pm – 10:00 pm
9:00 pm
Tickets
Join us the first Thursday of every month for an information meeting for new patients. CCM 101 is a space for newly diagnosed members and their families to ask questions, get support and connect with...
Zoom
Nov
4
Thu
Nov 4 @ 9:00 pm – 10:00 pm
9:00 pm
Tickets
Please join us every Thursday evening for our Zoom Support Group. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIsf-6sqDsuG9Yf37rQHUGtYKmxwNbJpxYQ After registering, you will receive a confirmation email containing information about joining the meeting.
July – November 2021 Jul – Nov 2021