Connecticut

Local Community Connections 

There is a dedicated group of volunteers in the Tri-State area.

Reach out to Linda Fuscher to connect with other area volunteers: linda@alliancetocure.org

You can also become a member of our Facebook group to join our group discussion.

Pediatric Center of Excellence (COE):

Alliance to Cure Cavernous Malformation has recognized Boston Children’s Hospital as a Center of Excellence.

Medical Director and Pediatric Cerebrovascular Neurosurgeon: Edward Smith, MD

Phone: (617) 919-1379

For more information about our other Centers of Excellence, please visit our information page.

Adult Center of Excellence (COE):

Alliance to Cure Cavernous Malformation has recognized Penn Medicine, Hospital of the University of Pennsylvania as a Center of Excellence.

Medical Director and Cerebrovascular Surgeon: Dr. Jan-Karl Burkhardt

Phone: 215-662-3487

upcoming events

Please visit our Calendar for events online and around the country.