Current News & Updates

Biomarker Development Project in El Paso Seeking Participants

Texas Tech University Health Sciences Center El Paso has begun a project to identify the genetic factors that cause cerebral cavernous malformations (CCMs) and validate new potential blood biomarkers for early detection. They are seeking to recruit Hispanic CCM patients to donate a blood sample and clinical data.  Blood biomarkers will allow us to predict…

New Research: Cancer-linked mutation accelerates growth of CCM lesions

What’s new? CCM lesions develop when blood vessel cells (endothelial cells) lose the function for one of the CCM genes. New research shows us that, for those lesions that are actively growing and causing symptoms, the endothelial cells also have acquired mutations in a common cancer-causing gene called PIK3CA. This discovery adds to the body…

University of Virginia recognized as CCM Center of Excellence

Angioma Alliance is pleased to announce that we are recognizing the University of Virginia Health System as a CCM Center of Excellence. UVA was first recognized as a CCM Clinical Center in 2018, a designation that indicates they provide integrated, expert multi-disciplinary care for CCM patients. Under the leadership of Medical Director Dr. Min Park,…