Current News & Updates

Scientific Advisory Board COVID-19 Statement

The North American clinicians on the Angioma Alliance Scientific Advisory Board have issued an updated COVID-19 statement that includes information from the COVID-19 registry on COVID risk as well as recommendations regarding vaccination for cavernous angioma (cerebral cavernous malformation, cavernoma) patients. Consensus Statement by the Angioma Alliance Scientific Advisory Board Regarding COVID-19 and Cavernous Angiomas,…

Biomarker Development Project in El Paso Seeking Participants

Texas Tech University Health Sciences Center El Paso has begun a project to identify the genetic factors that cause cerebral cavernous malformations (CCMs) and validate new potential blood biomarkers for early detection. They are seeking to recruit Hispanic CCM patients to donate a blood sample and clinical data.  Blood biomarkers will allow us to predict…

New Research: Cancer-linked mutation accelerates growth of CCM lesions

What’s new? CCM lesions develop when blood vessel cells (endothelial cells) lose the function for one of the CCM genes. New research shows us that, for those lesions that are actively growing and causing symptoms, the endothelial cells also have acquired mutations in a common cancer-causing gene called PIK3CA. This discovery adds to the body…