Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. It’s facilitated by Lindsay Ramirez and Darla Clayton. Please contact Lindsay Ramirez for the link to participate. We are considering adding break-outs to this group so that those with…
The COVID-19 situation is fluid. Please follow your medical care provider’s advice for care. We have also hosted a COVID-19 and CCM webinar with Dr. Issam Awad and Dr. Kelly Flemming to help inform. If you are a cavernous angioma (CCM) patient who has tested positive for COVID-19 infection, please join the CCM COVID-19 Registry for our joint study…
Legislation calls for increased research, resources. Watch our tutorial video and read about our national legislation to learn how easy it is to advocate for a cure!
