Current News & Updates

New Research: Cancer-linked mutation accelerates growth of CCM lesions

What’s new? CCM lesions develop when blood vessel cells (endothelial cells) lose the function for one of the CCM genes. New research shows us that, for those lesions that are actively growing and causing symptoms, the endothelial cells also have acquired mutations in a common cancer-causing gene called PIK3CA. This discovery adds to the body…

University of Virginia recognized as CCM Center of Excellence

Angioma Alliance is pleased to announce that we are recognizing the University of Virginia Health System as a CCM Center of Excellence. UVA was first recognized as a CCM Clinical Center in 2018, a designation that indicates they provide integrated, expert multi-disciplinary care for CCM patients. Under the leadership of Medical Director Dr. Min Park,…

New Research: Pregnancy and Cavernous Malformation

A new study, published in the journal Stroke, investigated whether pregnancy increases hemorrhage risk for women with cavernous malformations (cavernous angioma, cavernoma). Results showed that hemorrhage risk, in fact, does not appear to increase during pregnancy. Furthermore, the study indicated that vaginal delivery also appears safe in women with cavernous malformations, if they don’t have other significant health…