What’s new? CCM lesions develop when blood vessel cells (endothelial cells) lose the function for one of the CCM genes. New research shows us that, for those lesions that are actively growing and causing symptoms, the endothelial cells also have acquired mutations in a common cancer-causing gene called PIK3CA. This discovery adds to the body…
A recording of this webinar is now available on the Angioma Alliance YouTube channel. ——————– Cavernous angioma genetics can be confusing. The illness may be caused by hereditary genetic mutation or can occur spontaneously. Please join us on Thursday, April 22, at 7 pm ET, 4 pm PT, for a webinar with Dr. Connie…
Angioma Alliance is pleased to announce that we are recognizing the University of Virginia Health System as a CCM Center of Excellence. UVA was first recognized as a CCM Clinical Center in 2018, a designation that indicates they provide integrated, expert multi-disciplinary care for CCM patients. Under the leadership of Medical Director Dr. Min Park,…
Check out the art auction at www.biddingforgood.com/angioma. New art is a fantastic way to make an exciting change in your home decor, and help a great cause at the same time! Thank you to the Tri-State Angioma Alliance Community for stepping up to help make the art auction happen. To browse the auction on a…
A new study, published in the journal Stroke, investigated whether pregnancy increases hemorrhage risk for women with cavernous malformations (cavernous angioma, cavernoma). Results showed that hemorrhage risk, in fact, does not appear to increase during pregnancy. Furthermore, the study indicated that vaginal delivery also appears safe in women with cavernous malformations, if they don’t have other significant health…
