Registration Closes February 18th! Thanks to the support of a generous donor, the Alliance to Cure will host its first Family Weekend. Unlike our patient conferences, which focus on education, our Family Weekend will focus on fun, laughter, and community. When: June 28-July 1, 2024 (3 nights, 4 days) Where: Silver Bay YMCA Conference and…
Join us for a Caregiver Zoom Call on November 30th at 7:00 PM Eastern, 4:00 PM Pacific. We will be talking with author Sandy Tovray Greenberg about her book, Who Will Butter My Toast?: How to Create a Handbook for Caregivers. Her daughter Tovah Segelman Spring will lead us in a calming meditation. A link…
We are thrilled to recognize Judy Kogan as our Volunteer of the Month for her outstanding contributions to our organization. Judy has been our Malibu volunteer organizer for our annual Malibu walk for an incredible seven years, demonstrating unwavering dedication and commitment. Thank you for all that you do!
Read our latest newsletter with a 2023 science wrap-up, information about our new family weekend and children’s book, and much more. Autumn 2023 Newsletter
The Ann & Robert H. Lurie Children’s Hospital of Chicago has been recognized as a designated Clinical Center by the Alliance to Cure Cavernous Malformation for the treatment of cavernous malformations. Lurie Children’s Hospital in Chicago, Illinois, is a comprehensive healthcare facility that provides specialized care for a broad spectrum of pediatric patients. Lurie Children’s…
