Please also check our Calendar for a complete view of what’s in store.
Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. The first Thursday of each month includes a breakout for the newly diagnosed and their loved ones to learn more. Support groups are facilitated by Lindsay Ramirez and Darla…
Dr. Blaine Hart and Dr. Marc Mabray, neuroradiologists at the University of New Mexico, have read more cavernous angioma MRIs than any doctors in the world. They have published numerous studies documenting what they’ve and helping us to gain a better understanding of the impact of cavernous angioma, and particularly, familial disease. This webinar was…
This webinar is now available for viewing on our YouTube channel with closed captioning.
Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who…
We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…
