Please also see our Calendar for a complete view of what’s in store.
Our next in-person event is scheduled for September 18th at the Torrington County Club in West Goshen, CT. Come taste wonderful wine and support Angioma Alliance. The DeMichiel and Ponte families have hosted this annual event since 2015, and each year it just keeps getting better. Look for more information to come.
We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…
Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who…
Why is this important? Statins are a class of drugs commonly used to treat high blood pressure. Statins have wide-ranging effects in the body and are known to alter many different chemical signaling systems. In recent years, CCM researchers have shown that the Rho Kinase (ROCK) inhibiting action of statins may have potential therapeutic effect…
Legislation calls for increased research, resources. Watch our tutorial video and read about our national legislation to learn how easy it is to advocate for a cure!
