Volunteer Opportunities

Please also see our Calendar for a complete view of what’s in store.

Submit a Recipe for the CCM Healthy Cookbook

Help the Angioma Alliance Community by sharing a recipe for the 2nd Edition of the CCM Healthy Cookbook! In light of new research indicating that diet, specifically emulsifier and artificial preservative use, has a negative effect on the gut lining and cavernous angioma health, we are soliciting recipe submissions for a cookbook to help our…

Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM) and the Scientific Advisory Board Statement on COVID-19 Vaccines. We request that patients or families report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who tests positive for COVID-19. After entering your information, you’ll be…

Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…