Patient Participation

Celebrating Together for a Cure 2021

Please join us on August 29th, 2021 for a national Angioma Alliance event to celebrate together for a cure. This event includes a live-streamed program featuring stories and opportunities to give as well as simultaneous in-person parties around the country. We hope for at least 50 different sites celebrating together. More information about hosting Planned…

Biomarker Development Project in El Paso Seeking Participants

Texas Tech University Health Sciences Center El Paso has begun a project to identify the genetic factors that cause cerebral cavernous malformations (CCMs) and validate new potential blood biomarkers for early detection. They are seeking to recruit Hispanic CCM patients to donate a blood sample and clinical data.  Blood biomarkers will allow us to predict…

Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…