Patient Participation

Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM) and the Scientific Advisory Board Statement on COVID-19 Vaccines. We request that patients or families report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who tests positive for COVID-19. After entering your information, you’ll be…

Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…