Patient Participation

Scientific Advisory Board COVID-19 Statement

The North American clinicians on the Angioma Alliance Scientific Advisory Board have issued an updated COVID-19 statement that includes information from the COVID-19 registry on COVID risk as well as recommendations regarding vaccination for cavernous angioma (cerebral cavernous malformation, cavernoma) patients. Consensus Statement by the Angioma Alliance Scientific Advisory Board Regarding COVID-19 and Cavernous Angiomas,…

Biomarker Development Project in El Paso Seeking Participants

Texas Tech University Health Sciences Center El Paso has begun a project to identify the genetic factors that cause cerebral cavernous malformations (CCMs) and validate new potential blood biomarkers for early detection. They are seeking to recruit Hispanic CCM patients to donate a blood sample and clinical data.  Blood biomarkers will allow us to predict…

Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…