Many factors play into surgical decision-making including the location and size of the lesion, whether it has hemorrhaged, and the experience of the surgeon. The Angioma Alliance Clinical Care Consensus Guidelines discuss these issues and may help to frame the conversation with your care provider.
In making decisions about surgery, it is always a good idea to consult experts. Angioma Alliance has recognized Centers of Excellence. These Centers of Excellence have expert surgeons who performed hundreds of cavernous angioma surgeries. Around the US and in other countries, there are other university centers with expert neurosurgeons that may be closer to you – you can receive referrals from in our online support groups.
This section provides information on different types of surgery that are now available or in development. Traditionally, cavernous angioma lesions were removed (resected) using open brain surgery or laminectomy if the lesion was in the spine. Traditional surgery remains the most common intervention.
For those who have already made the decision to have surgery, our website offers information you can use to prepare.