Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM) and the Scientific Advisory Board Statement on COVID-19 Vaccines.
We request that patients or families report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who tests positive for COVID-19.
After entering your information, you’ll be contacted by our study staff. They will set up a time to interview you about your COVID-19 experience. The interview will take place at least 30 days after your first symptom or 30 days after your positive COVID-19 test if you were asymptomatic. Any kind of positive test result is eligible – PCR, antigen, or antibody.
We plan to analyze this information and share results with the patient, clinical, and research communities as well as publishing the results as appropriate.
Please complete the form below and a member of our clinical research team will reach out to you for more information in the coming weeks.