Webinars and Conference Presentation Videos

Angioma Alliance frequently hosts informational webinars and patient conferences. This page includes recordings of these events as well as patient stories. Closed-captioning is available for most videos.

Recent Webinars

Empowerment through Research Participation – Dr. Connie Lee, Spencer Rosero – October 2021

Recursion Pharmaceutical REC-994 Clinical Trial – Dr. Lisa Boyette – September 2021

CCM Clinical Decision-Making – Dr. Jan-Karl Burkhardt – July 2021






Rapamycin, Atorvastatin Trial, Biomarkers, and More – Dr. Issam Awad – June 2021

PIK3CA Mutation and CCM – Dr. Mark Kahn and Dr. Doug Marchuk – June 2021

Solving the Problem of a Leaky Lesion – Dr.  Anuska Andjelkovic-Zochowski – May 2021

CCM Genetics and You – Dr. Connie Lee – April 2021

Understanding and Supporting Children with CCM – Dr. Christine Petranovich – March 2021

CCM Research and COVID Updates – Dr. Issam Awad, University of Chicago – February 2021

Accelerating Our Journey to a Cure – Dr. Connie Lee, Angioma Alliance – December 2020

Atorvastatin Trial Update and Other CCM Research – Dr. Issam Awad, University of Chicago – October 2020

A Patient’s Guide to Imaging – Dr. Blaine Hart and Dr. Marc Mabray, University of New Mexico Health Sciences – September 2020

CCM Updates in the COVID-19 Era – Dr. Issam Awad, University of Chicago – August 2020


Blood Thinners and Cavernous Angioma – Dr. Kelly Flemming, Dr. Mark Ginsberg, and Dr. Miguel Lopez-Ramirez – May 2020

Atorvastatin Trial Update – Dr. Issam Awad – April 2020

Cavernous Angioma and COVID-19 – Dr. Kelly Flemming and Dr. Issam Awad – March 28, 2020

Patient Conferences

United States Patient Conference – November 2019

Dr. Issam Awad – Keynote Presentation

Dr. Min Park – Introduction to Cavernous Angioma

Dr. Atif Zafar – Treating Cavernous Angioma Symptoms

Dr. Ron Alfa – REC-994 and the CCM-Health Index

Dr. Mark Kahn – Recent Microbiome Research Progress

Diane Darcy, RD- CCM-Healthy Diet

Dr. Kimberly Foley – Treating Sleep Apnea

Dr. Amy Akers – 2019 CCM Research Summary

Patient Stories

Cavernous Angioma Awareness Month Finale, June 28th, 2020

Tyler Fairbank: Road to Recovery

Brian Wagner – If You Could See What I See