News

Baptist Medical Center and Wolfson Children’s Hospital Recognized

Angioma Alliance has recognized Baptist Medical Center and Wolfson Children’s Hospital in Jacksonville, Florida as CCM Clinical Centers. CCM Clinical Centers provide integrated multi-disciplinary care to CCM patients, following the CCM Clinical Care Consensus Guidelines developed by the Angioma Alliance Scientific Advisory Board.   Announcement from Baptist Medical Center Announcement from Wolfson Children’s Hospital Contact…

CCM-CARE Act Introduced

On December 14, 2021, Senator Ben Ray Lujan, and Senator Martin Heinrichs from New Mexico introduced federal legislation called the CCM-CARE Act of 2021. It is known as Senate Bill 3390. The legislation calls for increased funding of research and care for cerebral cavernous malformations (CCM) and prioritization of the illness by the Food and Drug…

CCM Patient-Expert Course Launched!

Be recognized for what you know! Angioma Alliance patients and families often become experts in cavernous angioma (CCM) out of necessity.  Angioma Alliance offers a structured way to facilitate learning about the illness to improve medical decision-making and peer support through our Patient-Expert Certificate Program. This 5-hour multimedia interactive course is not a substitute for…