Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. It’s facilitated by Lindsay Ramirez and Darla Clayton. Please contact Lindsay Ramirez for the link to participate. We are considering adding break-outs to this group so that those with shared interests, e.g., parents or young people, can talk separately.
We also have a quarterly group specific to those with spinal cavernous angioma. Please contact firstname.lastname@example.org to receive information about the next meeting.
Some of our Community Alliances host regional groups. Please check your state’s information on our Local Community Alliance page.