Participate in Research

Researchers have begun to include humans in studies, which is known as clinical research. These clinical studies can help us understand how the illness affects people over time (natural history studies) or can assign volunteers to groups that receive health-related interventions to compare their effectiveness (clinical trials). These research studies require human participants like you.

Join the Patient Registry

Join patients around the world in building the Registry community.

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The flowchart below is a tool designed to help identify studies for which you may be interested and eligible to participate.

Everyone with a cavernous angioma in the brain or spinal cord can join the Angioma Alliance Cavernous Angioma Registry to receive personalized notifications about new research and to add to our understanding of the illness. Registering takes only 20 minutes.

Research participation flowchart

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