Connie Lee, Psy.D. – President and CEO
Connie Lee is the founding President of Angioma Alliance. Connie is a licensed clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Connie’s personal story with cavernous angioma began in January 2000. At that time, Connie’s 4-month-old daughter Julia received brain surgery for a major hemorrhage and hydrocephalus caused by a cavernous angioma. Dr. Lee founded Angioma Alliance in 2002. She has guided the organization from its beginnings as a support group to its current role as the driving force for research, legislation, and patient care. You can reach Dr. Lee at firstname.lastname@example.org.
Science and Research
Amy Akers, Ph.D. – Chief Scientific Officer
Prior to joining Angioma Alliance as Chief Scientific Officer in 2009, Amy Akers began her cavernous angioma research career at Duke University. At Duke, she worked in the lab of distinguished geneticist and long-time Scientific Advisory Board member, Doug Marchuk, Ph.D. While in Dr. Marchuk’s lab, Dr. Akers focused on developing mouse models for cavernous angioma and on investigating the molecular nature of human brain lesion development. Her genetic studies succeeded in providing evidence that two genetic ‘hits’ are necessary for the genesis of familial cavernous angioma lesions. Prior to receiving her Ph.D. from Duke’s University Program in Genetics & Genomics, Dr. Akers completed her undergraduate studies at Cornell University where she graduated Cum Laude with a degree in biological sciences. You can reach Dr. Akers at email@example.com.
Adrienne Sheline, MPH – Clinical Research Specialist
Adrienne Sheline is the Angioma Alliance team member who can respond to the request, “Tell us about your members” using data and who can assist researchers and industry in bringing this information to bear toward their work for better treatments. Adrienne is part of the Angioma Alliance research recruiting team, working to engage members as informed research participants and promoting research participation opportunities. Adrienne holds a master’s degree in public health with a focus on health promotion and education, as well as many years of clinical research experience in pediatric neurosurgery. She has a great interest and passion for neurological research and loves working with both patients and their families. You can reach Adrienne at firstname.lastname@example.org.
Community Engagement and Fundraising
Jessica Biggs, MPH – Health Equity Program Development and Outreach Specialist
Jessica Biggs joined Angioma Alliance as the Health Equity Program Development and Outreach Specialist. In this position, Jessica will lead equity, diversity, & inclusion efforts both in our targeted outreach programs and in our organization, including the grant-funded Breaking Barriers Initiative.
Jessica has a background in the community health and promotion field, working to improve socioeconomic and racial disparities within her local community, and has worked for local school nutrition programs, county organizations, and most recently the RUHS-Black Infant Health program. Jessica received a Master of Public Health from Grand Canyon University and possesses a Bachelor of Science degree majoring in Nutrition and Food Science with a Minor in Education. You can reach Jessica at email@example.com.
Darla Clayton, Psy.D. – Community Engagement and Fundraising Specialist – East
Darla is a clinical psychologist and the head coach and “chief cook and bottle washer” for an adaptive track and field team she founded 8 years ago. She serves on the board for Adaptive Track and Field USA and for Dralla. Darla and her two children have been diagnosed with a mutation of the CCM2 gene. She has been a member of Angioma Alliance since 2005 and has volunteered as a Peer Support Mentor for Angioma Alliance, supporting families of newly diagnosed children. You can reach Darla at firstname.lastname@example.org.
Lindsay Ramirez – Community Engagement and Fundraising Specialist – West
Before joining Angioma Alliance, Lindsay was been involved with Angioma Alliance as the Co-Chair of the Orange County walk and founding Chair of the Southern California Community Alliance. Previously, she was a certified athletic trainer with 12 years of health and medical experience, as well as an educator of sports medicine and advisor for the Sports Medicine Program. Lindsay has an affected husband and son. You can reach Lindsay at email@example.com.