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Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the...

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Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high...

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Update Your Cavernous Angioma Patient Registry Profile

We've upgraded the Registry with new surveys and new info. Update your profile or join...

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By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

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Cavernous Angioma 101

If you or a loved one are newly diagnosed, please join us on Thursday, August 6th at 5 pm Pacific, 8 pm Eastern for this Zoom meeting!  We will have a brief presentation followed by an extended opportunity to ask questions. We are not doctors, but we can share information and our experiences. This is…

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Issam Awad, MD, MSc, FACS
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Webinar: CCM Updates in the COVID-19 Era, August 13th

Please join Dr. Issam Awad, Chair of the Angioma Alliance Scientific Advisory Board, Kristina Piedad, and Connie Lee for a brief “CCM and COVID-19 update” and an open question-and-answer session on Thursday, August 13th at 4 pm PT, 5 pm MT, 6 pm CT, 7 pm ET. Please submit questions for Dr. Awad to Connie…

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Online Chat Groups Now Meeting

Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. The first Thursday of each month includes a breakout for the newly diagnosed and their loved ones to learn more. Support groups are facilitated by Lindsay Ramirez and Darla…

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Covid-19
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Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who…

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Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…

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It's time for a finale!
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Finale! June Cavernous Angioma Awareness Month

If you missed our live Cavernous Angioma Awareness Month finale, you haven’t lost your chance to see it. You can find a recording on our YouTube channel. Enjoy!

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Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high blood pressure. Statins have wide-ranging effects in the body and are known to alter many different chemical signaling systems. In recent years, CCM researchers have shown that the Rho Kinase (ROCK) inhibiting action of statins may have potential therapeutic effect…

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US Capitol
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CCM Care Act Introduced

Legislation calls for increased research, resources.  Watch our tutorial video and read about our national legislation to learn how easy it is to advocate for a cure!      

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News & Updates

Jackson Memorial Hospital

University of Miami-Jackson Health System Recognized

We are pleased to announce that the University of Miami-Jackson Health System has been recognized...

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Microbiome

New Microbiome Study Published

For those of you who participated in the microbiome study by sending in a sample...

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Covid-19

COVID-19 and Cavernous Angioma Public Statement

The COVID-19 situation is fluid. Please follow your medical care provider's advice for care. We...

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US Capitol

CCM Care Act Introduced

Legislation calls for increased research, resources.  Watch our tutorial video and read about our national...

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