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Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the...

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Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high...

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Update Your Cavernous Angioma Patient Registry Profile

We've upgraded the Registry with new surveys and new info. Update your profile or join...

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By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

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Let's Talk Brain Health
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Nutrition and Brain Health Discussion

Join Angioma Alliance member and Registered Dietitian Cristina Svec for a general discussion about nutrition and brain health on Wednesday, July 15th at 5 pm PT, 8 pm ET. Because we know the microbiome has an impact on cavernous angioma disease severity, we hope you’ll join this Zoom meeting to learn more about how the…

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It's time for a finale!
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Finale! June Cavernous Angioma Awareness Month

If you missed our live Cavernous Angioma Awareness Month finale, you haven’t lost your chance to see it. You can find a recording on our YouTube channel. Enjoy!

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Online Chat Groups Now Meeting

Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. It’s facilitated by Lindsay Ramirez and Darla Clayton. Please contact Lindsay Ramirez for the link to participate. We are considering adding break-outs to this group so that those with…

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Connecticut Wine Tasting Still On!

Our next in-person event is scheduled for September 18th at the Torrington County Club in West Goshen, CT. Come taste wonderful wine and support Angioma Alliance. The DeMichiel and Ponte families have hosted this annual event since 2015, and each year it just keeps getting better. Look for more information to come.

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Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…

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Covid
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Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who…

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Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high blood pressure. Statins have wide-ranging effects in the body and are known to alter many different chemical signaling systems. In recent years, CCM researchers have shown that the Rho Kinase (ROCK) inhibiting action of statins may have potential therapeutic effect…

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US Capitol
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CCM Care Act Introduced

Legislation calls for increased research, resources.  Watch our tutorial video and read about our national legislation to learn how easy it is to advocate for a cure!      

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News & Updates

Jackson Memorial Hospital

University of Miami-Jackson Health System Recognized

We are pleased to announce that the University of Miami-Jackson Health System has been recognized...

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RNA

Nucleic Therapy Used to Treat CCM in Mice

CD5-2, a drug made from nucleic acids (yes! just like our DNA), shows promising results...

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Microbiome

New Microbiome Study Published

For those of you who participated in the microbiome study by sending in a sample...

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Covid

COVID-19 and Cavernous Angioma Public Statement

The COVID-19 situation is fluid. Please follow your medical care provider's advice for care. We...

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US Capitol

CCM Care Act Introduced

Legislation calls for increased research, resources.  Watch our tutorial video and read about our national...

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