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Angioma Alliance Receives $600,000 Award from the Chan Zuckerberg Initiative to Advance Rare Disease Research

New Grants Support Organizations Prioritizing Diversity and Diagnosis in their Disease Areas  CHARLOTTESVILLE, VA (November 3, 2021) — Today, the Chan Zuckerberg Initiative (CZI) announced $13 million in funding for 40 patient-led, rare disease advocacy organizations that are working alongside researchers and clinicians...

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Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high...

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By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

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