Angioma Alliance | Because Brains Shouldn't Bleed

Angioma Alliance COVID-19 Registry

Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the...

Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high...

Update Your Cavernous Angioma Patient Registry Profile

We've upgraded the Registry with new surveys and new info. Update your profile or join...

By whatever name you know it - cavernous angioma, cavernoma, cerebral cavernous malformation - find information, opportunities, and hope here.

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Orange County CA Staggered-Start Walk

Register/donate: give.classy.org/OCwalk Join us Saturday, September 19th for a stroll around the lake at Florence Joyner Olympiad Park in Mission Viejo. Our event will not look the same as usual, but we will continue to raise awareness and support during these uncertain times. We are asking teams of up to 10 people to sign up for…

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Spinal Cavernous Angioma Support Group Meeting

Please join us on Sunday, September 20th at 2 pm PT, 3 pm MT, 4 pm CT, 5 pm ET, 8 pm GMT. This Zoom meeting is for Angioma Alliance patients and caregivers who are affected by spinal cavernous angioma (cavernoma, cavernous malformation). Please join us to share information and discuss coping strategies. Registration is…

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Meeting Maggie Whittum: Recovery and Re-emergence

Maggie Whittum is re-emerging into life as an artist after having survived a massive cavernous angioma brainstem hemorrhage in 2014 at the age of 33. She performs with Phamaly Theatre Company in Denver, which exclusively casts actors with disabilities. Join us on September 23rd at 7 pm ET, 4 pm PT when Maggie will be…

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Atorvastatin Trial Update and Other News

Please join us on Thursday, October 15th at 7 pm ET, 6 pm CT, 5 pm MT, 4 pm PT. Dr. Issam Awad, cerebrovascular neurosurgeon and chair of the Angioma Alliance Scientific Advisory Board, will share with us the latest news on the progress of the atorvastatin trial to treat cavernous angioma with symptomatic hemorrhage….

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Cavernous Angioma 101

If you or a loved one are newly diagnosed, please join us on Thursday, October 1st at 5 pm Pacific, 8 pm Eastern for this Zoom meeting! We will have a brief presentation followed by an extended opportunity to ask questions. We are not doctors, but we can share information and our experiences. This is a…

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Online Chat Groups Now Meeting

Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. The first Thursday of each month includes a breakout for the newly diagnosed and their loved ones to learn more. Support groups are facilitated by Lindsay Ramirez and Darla…

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Webinar: A Patient’s Guide to Imaging

Dr. Blaine Hart and Dr. Marc Mabray, neuroradiologists at the University of New Mexico, have read more cavernous angioma MRIs than any doctors in the world. They have published numerous studies documenting what they’ve and helping us to gain a better understanding of the impact of cavernous angioma, and particularly, familial disease. This webinar was…

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Webinar: CCM Updates in the COVID-19 Era, Recording Available

This webinar is now available for viewing on our YouTube channel with closed captioning.

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Angioma Alliance COVID-19 Registry

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Update Your Cavernous Angioma Patient Registry Profile

We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…

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Finale! June Cavernous Angioma Awareness Month

If you missed our live Cavernous Angioma Awareness Month finale, you haven’t lost your chance to see it. You can find a recording on our YouTube channel. Enjoy!

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Atorvastatin Trial Now Enrolling

Why is this important? Statins are a class of drugs commonly used to treat high blood pressure. Statins have wide-ranging effects in the body and are known to alter many different chemical signaling systems. In recent years, CCM researchers have shown that the Rho Kinase (ROCK) inhibiting action of statins may have potential therapeutic effect…