Newly Diagnosed

Welcome to Angioma Alliance. We hope to provide you with the information and support that you need to understand your cavernous angioma (cavernoma, cavernous malformation) diagnosis and make treatment decisions.

What’s in a name? Cavernous angioma, cavernoma, and cerebral cavernous malformation (CCM) are synonyms for mulberry-shaped abnormal blood vessels in the brain or spinal cord.

The Newly Diagnosed section of our site provides the basic information everyone should know about cavernous angioma:

Fast Facts offers the 5-minute version of our information with a printable to share with family and friends, teachers, and others who are interested.

20 Questions Answered provides a deeper introduction to the symptoms and treatment of cavernous angioma, including illustrations and patient stories. It’s also printable.

Next, you’ll find a helpful list of Questions to Ask Your Doctor during your next appointment.

Other menu choices lead you to Care, Community, and Research.

Finally, we offer our Clinical Care Consensus Guidelines and a Glossary of medical terms associated with cavernous angioma.