Events & Opportunities

Please also check our Calendar for a complete view of what’s in store.

CCM Patient-Expert Course Launched!

Be recognized for what you know! Angioma Alliance patients and families often become experts in cavernous angioma (CCM) out of necessity.  Angioma Alliance offers a structured way to facilitate learning about the illness to improve medical decision-making and peer support through our Patient-Expert Certificate Program. This 5-hour multimedia interactive course is not a substitute for…

Help the Angioma Alliance Community by sharing a recipe for the 3rd Edition of the CCM Healthy Cookbook! In light of research indicating that diet, specifically emulsifier and artificial preservative use, has a negative effect on the gut lining and cavernous angioma health, we are soliciting recipe submissions for a cookbook to help our families…

Webinar – Dr. Jan Burkhardt, Penn Medicine – CCM Clinical Decision-Making

Date/Time:  July 29 at 7 pm ET, 4 pm PT.  Please join Dr. Jan-Karl Burkhardt, cerebrovascular neurosurgeon at the University of Pennsylvania Medicine, for a discussion of CCM clinical decision-making. Dr. Burkhardt will review factors taken into consideration when deciding between surgery versus conservative management of a cavernous angioma lesion. There will be an opportunity…