Please also check our Calendar for a complete view of what’s in store.
If you or a loved one are newly diagnosed, please join us on Thursday, August 6th at 5 pm Pacific, 8 pm Eastern for this Zoom meeting! We will have a brief presentation followed by an extended opportunity to ask questions. We are not doctors, but we can share information and our experiences. This is…
Please join Dr. Issam Awad, Chair of the Angioma Alliance Scientific Advisory Board, Kristina Piedad, and Connie Lee for a brief “CCM and COVID-19 update” and an open question-and-answer session on Thursday, August 13th at 4 pm PT, 5 pm MT, 6 pm CT, 7 pm ET. Please submit questions for Dr. Awad to Connie…
Angioma Alliance has added several online video groups for conversation and support. Our weekly group meets Thursdays at 8 pm ET, 5 pm PT via Zoom. The first Thursday of each month includes a breakout for the newly diagnosed and their loved ones to learn more. Support groups are facilitated by Lindsay Ramirez and Darla…
Please read the Angioma Alliance Scientific Advisory Board Consensus Statement on COVID-19 and cavernous angioma (CCM). A question-and-answer webinar about COVID-19 and cavernous angioma with Dr. Issam Awad and Dr. Kelly Flemming is available on our YouTube channel. We request that patients or family report to the newly established Angioma Alliance COVID-19 Registry any patient with cavernous angioma who…
We’ve upgraded the Registry with new surveys and new info. Update your profile or join now. Why Participate in the Registry? Join the international research community We need you! Clinical research and treatment trials rely on volunteer participants to help generate critical data to understand cavernous angioma and how to treat the illness. Every profile…
