Please also check our Calendar for a complete view of what’s in store.
On September 30th at 7 pm ET, 4 pm PT, please join Dr. Lisa Boyette, Recursion Pharmaceuticals’ Senior Director of Medical Affairs, who will be sharing details of the new REC-994 trial for cavernous angioma. REC-994 is the first industry-sponsored medicine to reach trials for our families, and we are thrilled to share information about…
Thank you for celebrating the opportunity to accelerate a cure with us!!! Our event has ended, and we are incredibly grateful for our community’s participation in this celebration. There were over 60 watch parties, large and small, around the country. We raised $197,000 to accelerate the cure for cavernous angioma (CCM). If you missed it,…
Date/Time: July 29 at 7 pm ET, 4 pm PT. Please join Dr. Jan-Karl Burkhardt, cerebrovascular neurosurgeon at the University of Pennsylvania Medicine, for a discussion of CCM clinical decision-making. Dr. Burkhardt will review factors taken into consideration when deciding between surgery versus conservative management of a cavernous angioma lesion. There will be an opportunity…
A recording of this webinar is now available on our YouTube channel. Please join Dr. Issam Awad on Wednesday, June 16th at 7 pm ET, 4 pm PT for this research and clinical trial update. He will be discussing rapamycin as a treatment for CCM, news from the atorvastatin trial and biomarker development, and…
The recorded webinar is now available online on our YouTube channel. Join us on Tuesday, June 8th at 1 pm ET, 10 am PT for a webinar discussing new research on the causes of CCM lesion growth. CCM lesions develop when blood vessel cells (endothelial cells) lose the function for one of the…
