Please also check our Calendar for a complete view of what’s in store.
Be recognized for what you know! Angioma Alliance patients and families often become experts in cavernous angioma (CCM) out of necessity. Angioma Alliance offers a structured way to facilitate learning about the illness to improve medical decision-making and peer support through our Patient-Expert Certificate Program. This 5-hour multimedia interactive course is not a substitute for…
Help the Angioma Alliance Community by sharing a recipe for the 3rd Edition of the CCM Healthy Cookbook! In light of research indicating that diet, specifically emulsifier and artificial preservative use, has a negative effect on the gut lining and cavernous angioma health, we are soliciting recipe submissions for a cookbook to help our families…
This webinar is now available on our YouTube channel. On September 30th at 7 pm ET, 4 pm PT, please join Dr. Lisa Boyette, Recursion Pharmaceuticals’ Senior Director of Medical Affairs, who will be sharing details of the new REC-994 trial for cavernous angioma. REC-994 is the first industry-sponsored medicine to reach trials for our…
Thank you for celebrating the opportunity to accelerate a cure with us!!! Our event has ended, and we are incredibly grateful for our community’s participation in this celebration. There were over 60 watch parties, large and small, around the country. We raised $197,000 to accelerate the cure for cavernous angioma (CCM). If you missed it,…
Date/Time: July 29 at 7 pm ET, 4 pm PT. Please join Dr. Jan-Karl Burkhardt, cerebrovascular neurosurgeon at the University of Pennsylvania Medicine, for a discussion of CCM clinical decision-making. Dr. Burkhardt will review factors taken into consideration when deciding between surgery versus conservative management of a cavernous angioma lesion. There will be an opportunity…
