We’re Hiring: Community Development Specialist

Join our team!

Angioma Alliance, a national non-profit patient and research organization advocating for those affected by cerebral and spinal cavernous angioma, seeks a dynamic peer-to-peer fundraising and community-building professional to assist us in securing the resources to further the mission of the organization during a very exciting time. Reporting directly to the Community Development Director, the Community Development Specialist is responsible for peer-to-peer in-person and online events. Our current annual $800,000 budget includes approximately $175,000 in peer-to-peer fundraising.

This part-time, 24-hour/week telecommuting position is an opportunity for a self-directed individual to make a difference. Angioma Alliance serves thousands of families with this common but rarely diagnosed illness, is at the cutting edge of research, and serves as a model for other rare disease organizations. As part of the fundraising team, the Community Development Specialist will:

  1. Recruit, mentor, and support volunteer members to expand their existing fundraising in-person and online events, create new events, and guide members to explore other opportunities for fund development in their communities. Oversee online fundraising platforms (currently, primarily Classy).
  2. Facilitate the development of local groups of patients and families by assisting with local online or in-person social and/or support meetups.
  3. Develop and maintain a line of branded merchandise both for events and for our online store, including working with volunteers to design, order, store, and ship.
  4. Work with executive staff to create and shape communication to motivate engagement, participation, and giving, including, but not limited to, website copy, social media posts, printed materials, videos, podcasts, and press releases.
  5. Explore novel revenue-generating ideas to evaluate for feasibility.
  6. Other responsibilities that are mutually agreed upon as promoting the mission of Angioma Alliance.


  • Exceptional communication skills with the ability to inspire and motivate donors and volunteers in person, on the phone, in written materials, and on social media.
  • 2+ years of experience in fundraising events and supporter engagement.
  • Strong organizational and time management skills with the ability to work independently and handle multiple projects simultaneously.
  • An ability to learn and communicate medical and scientific concepts.
  • A high degree of professionalism, ethics, passion, industriousness, creativity, and a can-do attitude.


  • This is a part-time 24-hour/week telecommuting position with flexible hours.
  • This position will include some evening and weekend hours to meet with volunteer event planning committees.
  • Benefits include paid annual leave including 10 pro-rated paid vacation days.
  • Angioma Alliance will provide financial support for continuing education, including professional certificate programs.


Please email the following to Connie Lee at clee@angioma.org. The position will be posted until filled.

  • Resume with salary expectations
  • Cover letter explaining your desire to work for Angioma Alliance and why your experience makes you qualified
  • Examples to demonstrate a track record of fundraising event success
  • A pre-employment writing test demonstrating proficiency in grammar and composition will be required.


Updated 12.1.2021