CCM Scientific Meeting

Together In-Person Again!

17th Anniversary Angioma Alliance

CCM Scientific Meeting

November 11 & 12, 2021
Bethesdan Hotel
Bethesda, Maryland

The CCM Scientific Meeting is a venue for international stakeholders to assemble, share, and discuss the latest CCM research data. Angioma Alliance hosts this annual series to facilitate scientific progress and collaborations.

Hotel Information

The 2021 meeting will be held at the Bethesdan Hotel in Bethesda, Maryland. Angioma Alliance has received a discounted rate of $179/night for a room with one King or 2 Queen size beds on the nights of November 10, 11, and 12.  To receive this rate, please use the link below for your reservation. The link will take you to our unique conference reservation page.


Scientific Meeting Registration

2021 Scientific Meeting registration is now open. Registration fees are as follows:

Should the in-person Scientific Meeting be canceled due to COVID-19 or other unforeseen circumstances, all registration fees will be refunded.  If you register and are unable to attend due to COVID-19 restrictions in your country or state of origin, your registration fee will be refunded.


Who may attend?

Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), CCM clinical practice, CCM drug development, and CCM advocacy (e.g., Angioma Alliance board members). Officials from the National Institutes of Health and Food and Drug Administration are also encouraged to attend. Upon registration, attendees will complete an eligibility questionnaire. Final attendance eligibility determinations are subject to decision by the Organizing Committee. To request registration information, please contact Connie Lee at

Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) are not allowed to attend scientific sessions.

2018 science meeting attendees
2018 Scientific Meeting Attendees

More Information

In order to ensure the latest information is presented at the meeting, we will solicit abstracts in August 2021. We will send an announcement via email to our current scientific mailing list. If you have not been receiving regular correspondence from us about poster sessions or this meeting, please write to be added to the distribution list.

In 2020, we hosted a virtual meeting where we shared unpublished data, engaged in lively discussions, facilitated hypothesis generation, and drove research for a cure for CCM.  View 2020 Agenda

For more historic meeting information, please visit the PAST MEETINGS section and view past meeting agendas that exemplify the broad range of researchers and projects from distinct fields, all of which contribute to a complete understanding of CCM disease biology.

For questions about the program, please contact Amy Akers at

For questions about hotel or registration, please contact Connie Lee at

Updated 5/30/2021