CCM Scientific Meeting

Together In-Person Again (MAybe)!

17th Anniversary Angioma Alliance

CCM Scientific Meeting

November 11 & 12, 2021
Bethesdan Hotel
Bethesda, Maryland

The CCM Scientific Meeting is a venue for international stakeholders to assemble, share, and discuss the latest CCM research data. Angioma Alliance hosts this annual meeting to facilitate scientific progress and collaborations.

covid updates (As of 8/11/2021)

No matter what, we will include a virtual option for this year’s meeting. We understand that international travel, in particular, may pose an insurmountable barrier to attendance. We are thinking through how best to do this given time zone differences. It is very likely that registration fees will be the same no matter whether you are attending in person or virtually as adding the level of A/V support required for a hybrid meeting will be a significant additional expense for us.

We will make a decision about moving to an entirely virtual meeting platform in mid- to late- September to allow you to adjust your travel plans, and we will do so with your input. At this time, we still have a significant number of scientists who would like to meet in person, and we are willing to do this if COVID cases appear to be dropping.

Hotel Information

The 2021 meeting is planned to be held at the Bethesdan Hotel in Bethesda, Maryland.  Angioma Alliance has received a discounted rate of $179/night for a room with one King or 2 Queen size beds on the nights of November 10, 11, and 12.  To receive this rate, please use the link below for your reservation. The link will take you to our unique conference reservation page.

Reservations must be made before October 15th to guarantee a room in our block at the conference rate.


Scientific Meeting Registration

2021 Scientific Meeting registration is now open. Registration fees are as follows:


Who may attend?

Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), CCM clinical practice, CCM drug development, and CCM advocacy (e.g., Angioma Alliance board members). Officials from the National Institutes of Health and Food and Drug Administration are also encouraged to attend. Upon registration, attendees will complete an eligibility questionnaire. Final attendance eligibility determinations are subject to decision by the Organizing Committee. To request registration information, please contact Connie Lee at

Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) are not allowed to attend scientific sessions.

2018 science meeting attendees
2018 Scientific Meeting Attendees

More Information

In order to ensure the latest information is presented at the meeting, our abstract deadline is September 7th. We have sent an announcement via email to our current scientific mailing list. If you have not been receiving regular correspondence from us about poster sessions or this meeting, please write to be added to the distribution list.

In 2020, we hosted a virtual meeting where we shared unpublished data, engaged in lively discussions, facilitated hypothesis generation, and drove research for a cure for CCM.  View 2020 Agenda

For more historic meeting information, please visit the PAST MEETINGS section and view past meeting agendas that exemplify the broad range of researchers and projects from distinct fields, all of which contribute to a complete understanding of CCM disease biology.

For questions about the program, please contact Amy Akers at

For questions about hotel or registration, please contact Connie Lee at

Updated 8/11/2021